We are all packed and ready to head into what Ava calls "the indoor playground" --- new meds start this afternoon and we will keep everyone posted on how Ava is doing. The main prayer request is for the new medicine to work well and not "react" with the amiodarone. Even though we stopped the amiodarone last week it stays around in her system a long time, which can be quite dangerous but this is why we are going into the hospital. Ava will be on monitors and with IV access in the event anything happens the team is ready to treat and she will be fine.
Ava,Claire and Olivia had a great night last night watching The Chimpanzee and snuggling close. The girls had a nice breakfast today and acted like nothing was happening, which is exactly what we had hoped for.
Still no "official" updates from Boston or Vanderbilt. Waiting ......
XOXO
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