Ava and I had a good night - Ava was in and out if her vtach but with a low rate so she seems to be adjusting fine. It is early to know if the new medicine is working but we are adding a second medicine (which she has been in before) and after 1p.m labs tomorrow we get to home and possibly make it in time for AWANA ...Ava super excited about that :-)
The feeling is quite strong by all that Ava is far to small for any invasive intervention, and essentially doing well - so we wait !!!! We wait and watch and monitor closely ...the only push to move ahead (Boston or Duke) would be if absolutely life saving necessary.
Back to life as we know on the outside soon ... YIPPEEE
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